School of Medicine

Medical Ethics

Selected Scholarly Publications

For more information about research publications, click on division members' names. 

Margaret Battin, MFA, PhD

  • Ethical Issues in Suicide, Englewood Cliffs, N.J.:  Prentice-Hall, first version 1982;  revised and expanded version, trade-titled The Death Debate: Ethical Issues in Suicide, 1995.
  • Puzzles About Art:  An Aesthetics Casebook,  by Margaret P. Battin, Anita Silvers, Ronald Moore, and John Fisher. New York: St. Martin's Press, 1989. 
  • Ethics in the Sanctuary:  Examining the Practices of Organized Religion. New Haven and London:  Yale University Press, 1990.
  • "Euthanasia: The Way We Do It, The Way They Do It," Journal of Pain and Symptom Management, Vol. 6, No. 5, July l99l; rev. version in Health Care Ethics,  Monagle and Thomasma, eds., Gaithersburg: Aspen Publishers,  l994; also reprinted in Biomedical Ethics, ed.Thomas A. Mappes and David DeGrazia, McGraw-Hill, 1995.
  • The Least Worst Death:  Essays in Bioethics on the End of Life, Oxford University Press, 1994.
  • “Population,” in Peter Singer and Helga Kuhse, eds., Companion to Bioethics, 2nd edition. Oxford: Blackwells, 1999.
  • Medicine and Social Justice:  Essays on the Distribution of Health Care, Rosamond Rhodes, Margaret P. Battin, and Anita Silvers, eds. New York: Oxford University Press, 2002, second edition 2012.
  • Ending Life: Ethics and the Way We Die.  New York:  Oxford University Press, 2005.
  • “Legal Physician-Assisted Dying in Oregon and the Netherlands: Evidence Concerning the Impact on Patients in ‘Vulnerable’ Groups,” by Margaret P. Battin, Agnes van der Heide, Linda Ganzini, Gerrit van der Wal, and Bregje D. Onwuteaka-Philipsen, Journal of Medical Ethics 33(10):591-97( October 2007).
  • Drugs and Justice: Seeking a Consistent, Coherent, Comprehensive View, by Margaret P. Battin, Erik Luna, Arthur G. Lipman, Paul M. Gahlinger, Douglas E. Rollins, Jeannette Roberts, and Troy L. Booher.  New York: Oxford University Press, 2008.
  • The Patient as Victim and Vector: Ethics and Infectious Disease, by Margaret P. Battin, Leslie P. Francis, Jay A. Jacobson, and Charles B. Smith. New York: Oxford University Press, 2009.
  • “The Irony of Supporting Physician-Assisted Suicide: A Personal Account,”  Medicine, Health Care and Philosophy 2010 Nov. 13(4):403-11.
  • “Population Growth and Decline: Issues of Justice,” in Routledge Companion to  Bioethics, ed. John Arras, Rebecca Kukla, Elizabeth Fenton.  New York and London: Routledge, 2015, pp. 403-416.
  • The Ethics of Suicide: Historical Sources.  New York: Oxford University Press,  in press, 2015; in Library/Press partnership with J. Willard Marriot Library at the University of Utah for associated online Digital Archive. 

For more titles, see CV of Peggy Battin, MFA, PhD 

Jeff Botkin, MD, MPH 

  •  Rothwell E, Wong R, Rose NC, Anderson R, Fedor B, Stark LA, Botkin JR. A randomized controlled trial of an electronic informed consent process. Journal of Empirical Research on Human Research Ethics 2014;9(5):1-7.
  •  Rothwell E, Anderson RA, Swoboda KJ, Stark L, Botkin JR. Public attitudes regarding a pilot study of newborn screening for spinal muscular atrophy.  Am J Med Genet A. 2013 Apr;161A(4):679-86. doi: 10.1002/ajmg.a.35756. Epub 2013 Feb 26.
  •  Botkin JR, Rothwell E, Anderson RA, Goldenberg A, Kupperman M, Dolan SM, Rose NC, Stark L. What parents want to know about the storage and use of residual newborn bloodspots. Am J Med Genet A. 2014 Nov;164(11):2739-44.
  •  Bhimarao CN, Rothwell E, Hart K, Latimer S, Schiffman JD, Botkin JR. Attitudes of parents of children with serious health conditions regarding the use of residual newborn screening specimens for research. Public Health Genomics. 2014;17(3):141-8. doi: 10.1159/000360251
  •  Botkin JR, Rothwell E, Anderson R, Stark LA, Mitchell J. Attitudes regarding the use of electronic health information and residual clinical tissues for research. Journal of Community Genetics DOI 10.1007/s12687-013-0175-8
  •  Botkin JR, Huckaby-Lewis M, Watson MS, Swoboda KJ, Anderson R, Bonhomme N, Brosco JP, Comeauy AM, Goldenberg A, Goldman E, Therrell B, Levy-Fisch, Tarini B, Wilfond B. Parental permission for pilot newborn screening research: Guidelines of the NBSTRN. Pediatrics 2014;133:e410-e417.
  •  Botkin JR, Anderson R, Murray T, Beskow LM, Maschke K, Cuttler L. Proposed regulations for research with Biospecimens: responses from stakeholders at CTSA consortium institutions. AJMG 2014 Apr;164A(4):892-7. doi: 10.1002/ajmg.a.36365.
  •  Burke W, Antommaria AH, Bennett R, Botkin J, Clayton EW, Henderson GE, Holm IA, Jarvik GP, Khoury MJ, Knoppers BM, Press NA, Ross LF, Rothstein MA, Saal H, Uhlmann WR, Wilfond B, Wolf SM, Zimmern R. Recommendations for returning genomic incidental findings? We need to talk!  Genetics in Medicine 2013; August 2013. doi:10.1038/gim.2013.113
  • Rothwell, E., Clark, L., Anderson, R., & Botkin, J.R. Residual Newborn Screening Samples for Research: Parental Information Decision Needs. Journal of Specialists in Pediatric Nursing 2013 18(2):115-22. doi: 10.1111/jspn.
  •  Botkin JR, Goldenberg A, Rothwell E, Anderson RA, Huckaby-Lewis M. Retention and research use of residual newborn screening bloodspots. Pediatrics 2013;131:120-127.
  •  Kemper AR, Kus CK, Otrander RJ, Comeau AM, Bouyle CA, Dougherty D, Mann MY, Botkin JR, Green NS. A framework for considering point-of-care newborn screening. Genetics in Medicine 2012;14:951-4. Doi: 10.1038/gim.2012.89
  •  Rothwell E, Anderson RA, Goldenberg A, Lewis MH, Stark L, Burbank M, Wong B, Botkin JR.Assessing public attitudes on the retention and use of residual newborn screening blood samples: a focus group study. Social Science & Medicine 2012; DOI: 10.1016/j.socscimed.2011.12.047
  •  Botkin JR. The value of evidence-based risk assessments. Clinical Trials 2011;8:685-686. 
  •  Botkin JR, Rothwell E, Anderson R, Stark L, Goldenberg A, Lewis M, Burbank M, Wong B. Public attitudes regarding the use of residual newborn screening specimens for research. Pediatrics 2012;129:231-238.
  •  Botkin JR. Newborn screening for Fragile X: Do we care what parents think?  Pediatrics 2011;127:e1170.

For more titles, see CV of Jeffrey Botkin, MD, MFA

Samuel Brown, MD, MA

  • Brown SM, Elliott CG, Paine R (2013). Withdrawal of nonfutile life support after attempted suicide. Am J Bioeth, 13(3), 3-12.
  • Pratt CM, Hirshberg EL, Jones JP, Kuttler KG, Lanspa MJ, Wilson EL, Hopkins RO,  Brown SM (2015). Long-term outcomes after severe shock. Shock, 43(2), 128-32. 
  • Brown SM, Rozenblum R, Aboumatar H, Fagan MB, Milic M, Lee BS, Turner K, Frosch DL (2015). Defining patient and family engagement in the intensive care unit. Am J Respir Crit Care Med, 191(3), 358-60. 
  • Brown SM, McBride G, Collingridge DS, Butler JM, Kuttler KG, Hirshberg EL, Jones JP, Hopkins RO, Talmor D, Orme J (2015). Validation of the intermountain patient perception of quality (PPQ) survey among survivors of an intensive care unit admission: a retrospective validation study. BMC Health Serv Res, 15(1), 155.
  • Walkey AJ, Pencina KM, Knox D, Kuttler K, D'Agostino R, Benjamin EJ, Brown SM (in press, 2015). Five-Year Risk for Mechanical Ventilation among Community-Dwelling Adults: The Framingham-Intermountain Anticipating Life Support Study (FIALS). J Am Geriatr Soc.
  • Chapman D, Collingridge D, Mitchell L, Wright E, Hopkins RO, Butler J, Brown SM (in press, 2015). Family and Nurse Satisfaction with Elimination of all Visitation Restrictions in a Mixed-Profile Intensive Care Unit, a Prospective Observational Study. Am J Crit Care.

Teneille Brown, JD

  • Teneille R. Brown, Denying Death (submitted February 2015)
  • Teneille R. Brown, From Bibles to Biomarkers: The Future of Forensic Psychiatric Diagnosis and the DSM (forthcoming from the University of Utah Law Review Symposium I hosted in 2014)
  • Teneille R. Brown, In-corp-o-real: A Psychological Critique of Corporate Personhood and Citizens United, 12 FSU BUSINESS LAW REVIEW 1 (2013)
  • Lisa Aspinwall, Teneille R. Brown, and Jim Tabery, The Double-Edged Sword: Does Biomechanism Increase or Decrease Judges’ Sentencing of Psychopaths? 337 SCIENCE 846 (2012)
  • Teneille R. Brown, The Affective Blindness of Evidence Law, 89 UNIVERSITY OF DENVER LAW REVIEW 47 (2012)
  • Teneille R. Brown & Jennifer McCormick, Emerging Issues in Neuroscience Policy, OXFORD HANDBOOK ON NEUROETHICS (eds. Judy Illes and Barbara Sahakian) (Oxford University Press, Oxford: May 2011
  • Teneille Brown & Emily Murphy, PhD, Through a Scanner Darkly: Functional Brain Imaging As Evidence of Past Mental States, 62 STAN. L. REV. 1119 (2010)
  • Teneille R. Brown, Review of Warren Brown and Nancy Murphy’s Did My Brain Make Me Do it? -- Tylenol for the Aristotelian Hangover, 1 AM. J. OF BIOETHICS – NEUROSCIENCE 71-72 (2010)
  • Teneille Brown and Kelly Lowenberg, Genetic Biobanks, Certificates of Confidentiality and the Subpoena Power, co-authored with Kelly Lowenberg, 2009 STAN. J. L. SCI. & POL’Y 88 (2010)
  • Teneille R. Brown, The Eminence of Imminence and the Myopia of Markets, 9 JOHN MARSHALL REVIEW OF INTELLECTUAL PROPERTY 674 (2010)
  • Teneille R. Brown, et al., When Scientific Data Become Legal Evidence, 324 SCIENCE 335 (2009) (reviewed letter to the editor)
  • Teneille Brown, Double Helix, Double Standards: private matters and public people, 11 J. of HEALTH CARE LAW & POLICY 295 (2008)
  • Walter Sinnott-Armstrong, Adina Roskies, Teneille Brown & Emily Murphy, Brain Images as Legal Evidence, 5 EPISTEME 359 (2008)

Gretchen Case, PhD

  • Case, Gretchen A. “Attending to the needs of the disabled on the social level.” The Picture of Health: Medical Ethics and the Movies. Eds. Henri Colt, Lester Friedman, Sylvia Quadrelli. Oxford: Oxford UP, 2011. 
  • Case, Gretchen A., Daniel J. Brauner "Doctor as Performer: An Analysis and Proposal for Change Based on a Performance Studies Model.” Academic Medicine.  85 (1), 159-63.

Leslie Francis, PhD, JD

  • Margaret P. Battin, Leslie P. Francis, Jay A. Jacobson & Charles Smith, The Patient as Victim and Vector: Bioethics and Infectious Disease, Oxford University Press, 2009.  (book)

Chapters in Books:

  • Francis, Leslie P. & Francis, John G. 2014. “Trafficking in Human Beings: Partial Compliance Theory, Enforcement Failure, and Obligations to Victims,” pp. 171-205, in Meyers, Diana, ed., Poverty, Agency, and Human Rights. New York: Oxford University Press.
  • Francis, Leslie P. & Francis, John G. “Informatics and Public Health Surveillance,” in Bioinformatics Law: Legal Issues for Computational Biology in the Post-Genome Era, ed. Jorge Contreras & James Cuticcia (American Bar Association, 2013).
  • Francis, Leslie P. “Transparency,” Ch. 7 in Information Privacy in the Evolving Healthcare Environment, ed. Linda Koontz, HIMSS 2013.
  • Silvers, Anita and Francis, Leslie P. “Thinking about the good: reconfiguring metaphysics (or not) for people with cognitive disabilities.” In Eva Feder Kittay & Licia Carlson, eds. Cognitive Disability and its Challenge to Moral Philosophy (Wiley-Blackwell 2010).
  • Francis, L.P., “Understanding Autonomy in Light of Intellectual Disability,” Disability and Disadvantage, ed. Kimberley Brownlee and Adam Cureton (Oxford University Press, 2009).

Articles:

  • Francis, LP. 2014. Adult Consent to Continued Participation in Patient Registries, St Louis University Journal of Health Law & Policy 7(2): 389-405.
  • Stein, M; Silvers, A; Areheart, B; Francis, L. 2014. “Accommodating Every Body.” University of Chicago Law Review  81(2): 689-757.
  • Francis, Leslie P. & Francis, John G. 2013. “HIV Treatment as Prevention: Not an Argument for Continuing Criminalization of HIV Transmission,” International Journal of Law in Context 9(4): 520 - 534. 
  • Silvers, Anita, and Francis, Leslie.  2013. Human Rights, Civil Rights: Prescribing Disability Discrimination Prevention in Packaging Essential Health Benefits. Journal of Law, Medicine & Ethics 42: 781-791. 
  • Francis, John G. & Francis, Leslie P. “Privacy, Confidentiality, and Justice: Using Large-Scale Sets of Health Data to Improve Public Health,” Journal of Social Philosophy 45(3): 408-431 (2014).
  • Francis, Leslie P. & Silvers, Anita. “Infanticide, Moral Status, and Moral Reasons:  the importance of context,” Journal of Medical Ethics 39(5):289-92 (2013). doi: 10.1136/medethics-2012-100767.
  • Francis, Leslie P., “When Patients Interact with EHRs: Problems of Privacy and Confidentiality,” Houston Journal of Health Law and Policy 12: 171-200 (2012).
  • Francis, Leslie P. & Francis John G. 2012.  Criminalizing Health-Related Behaviors Dangerous to Others? Disease Transmission, Transmission Facilitation, and the Importance of Trust, Criminal Law and Philosophy 6(1):  47-63, DOI: 10.1007/s11572-011-9136-7
  • Francis, Leslie P. 20ll. “Skeletons in the Family Medical Closet,” St. Louis University Journal of Health Law & Policy 4(2): 371-396.

Jay A. Jacobson, MD

  • Margaret P. Battin, Leslie P. Francis, Jay A. Jacobson & Charles Smith, The Patient as Victim and Vector: Ethics and Infectious Disease, Oxford University Press, 2009.
  • Jacobson, JA. Disclosing a Medical Error. PIER Clinical Guidance from ACP-ASIM. 2005. 

Brent Kious, MD, PhD

  • Kious BM (2008). Philosophy on steroids: why the anti-doping position could use a little enhancement. Theor Med Bioeth, 29(4), 213-34.
  • Kious BM (2010). Genetic nondiscrimination and health care as an entitlement. J Med Philos, 35(2), 86-100.
  • Kious BM (2011). Dispelling a few false-positives: a reply to MacGregor and McNamee on doping. Theor Med Bioeth, 32(3), 195-200.
  • Kious BM (2011). Internal control and inappropriate desires. Am J Bioeth, 11(8), 21-2.
  • Kious BM (2014). Brain rays, advertising, and fancy suits: the ethics of mind control. Journal of Cognition and Neuroethics, 2(1), 191-210.
  • Kious BM (2012). Must mental illness be uncommon? A reply to Marcia Angell [Web]. Psychiatric Times. Available: http://www.psychiatrictimes.com/articles/must-mental-illness-be-uncommon.
  • Kious BM (In Press). Autonomy and values: why the conventional theory of autonomy is not value neutral. Philosophy, Psychiatry & Psychology.
  • Kious BM (In Press). Justice in mental health care. In Sadler JZ (Ed.), Oxford Handbook of Psychiatric Ethics. Oxford University Press.
  • Lewis BR, Kious BM (In Press). The organic-functional distinction. In Perring C (Ed.), Encyclopedia of Clinical Psychology. Wiley-Blackwell.

Erin Rothwell, PhD

  • Jez, S., Martin, M., South, S., Vanzo, R., & Rothwell, E. (2015). Variants of unknown significance on chromosomal microarray analysis: Parental perspectives. Journal of Community Genetics (in press).
  • Rothwell, E., Maschke, K., Botkin, J.R., Goldenberg, A., Murray, T., & Rivera, S. (2015). Biobanking Research and Human Subjects Protections: Perspectives of IRB Leaders at CTSA Institutions. IRB: Ethics and Human Research (in press).
  • Rothwell, E., Botkin, J. & Anderson, R. (2015). Deliberative Focus Groups. Qualitative Research Journal (accepted).
  • Martin, M., Rothwell, E., Venne, V.L., & Foster, N. (2015). Perceptions of tissue storage in a dementia population among spouses and offspring. Journal of Genetic Counseling (accepted).
  • Rothwell, E., Wong, B., Rose, N.C., Anderson, R., Fedor, E., Stark, L., & Botkin, J.R. (2014). A randomized controlled trial of an electronic informed consent process. Journal of Empirical Research on Human Research Ethics, 1-7 (accepted).
  • Finan, C., Nasr, SZ, Rothwell, E. & Tarini, B. (2014). Primary care providers’ experiences notifying parents of cystic fibrosis newborn screening results. Clinical Pediatrics (published online Aug 6 )
  • Botkin, JR, Rothwell, E, Anderson, R., Stark, L., & Mitchell, J. (2013).  Public Attitudes Regarding the   Use of Electronic Health Information and Residual Clinical Tissues for Research, Journal of Community Genetics (accepted). No. JOCG-D-13-00033R1
  • Bhimarao, C.N., Rothwell, E., Hart, K., Latimer, S., Schiffman, J.D., & Botkin, J.R. (2014). Attitudes of parents of children with serious health conditions regarding residual bloodspot use. Public Health Genomics. Published online April 7, 2014. DOI: 10.1159/000360251.
  • Botkin, J.R., Rothwell, E., Anderson, RA.A., Goldenberg, A., Kuppermann, M., Dolan, S.M., Rose, N.C., & Stark, L. (2014). What parents should know about the storage and use of residual newborn bloodspots. AJMG (accepted).
  • Botkin, J., Goldenberg, A., Rothwell, E., Anderson, R., and Lewis, M. (2013). Policy guidance for the retention and research use of residual newborn screening bloodspots. Pediatrics, 131(1), 120-7. DOI: 10.1542/peds.2012-0852.
  • Rothwell, E., Anderson, R., Swoboda, K.J., Stark, L., & Botkin, J.R. (2012). Public attitudes regarding a pilot study of newborn screening for spinal muscular atrophy. American Journal of Medical Genetics,  161A(4): 679-86. doi: 10.1002/ajmg.a.35756.
  • Rothwell, E., Anderson, R., Goldenberg, A., Lewis, M.H., Stark, L., Burbank, M., Wong, B. Botkin, J.R. (2012). Assessing Public Attitudes on the Retention and Use of Residual Newborn Screening Blood Samples: A Focus Group Study. Social Science and Medicine, 74(8), 1305-9.
  • Rothwell, E., Clark, L., Anderson, R., & Botkin, J.R. (2012). Residual Newborn Screening Samples for Research: Parental Information Decision Needs. Journal of Specialists in Pediatric Nursing, 18(2), 115-122. DOI: 10.1111/jspn.12017

James Tabery, PhD

  • Tabery, James (2014), Beyond Versus: The Struggle to Understand the Interaction of Nature and Nurture. Cambridge, MA: The MIT Press. 
  • Tabery, James, Monika Piotrowska, and Lindley Darden (2015), “Molecular Biology, The Stanford Encyclopedia of Philosophy, Edward N. Zalta (ed.). Available online at: http://plato.stanford.edu/entries/molecular-biology/
  • Tabery, James (2015), “Nature versus Nurture”, in The Eugenics Archive. Available online at: http://eugenicsarchive.ca/discover/encyclopedia/535eed0d7095aa0000000241
  • Tabery, James (2014), “Genetics”, in The Eugenics Archive. Available online at: http://eugenicsarchive.ca/discover/encyclopedia/535eec197095aa000000022c
  • Tabery, James (2014), “Can (and Should) We Regulate Neurosecurity?: Lessons from History”, in James Giordano (Ed.), Neurotechnology in National Security and Defense: Practical Considerations, Neuroethical Concerns. Boca Raton, FL: CRC Press. Pp. 249-258.   
  • Tabery, James (2014), “Identifying the ‘Able’ in a Vari-able World: Two Lessons”, in H-Dirksen L. Bauman and Joseph J. Murray (Eds.), Deaf Gain: Raising the Stakes for Human Diversity. Minneapolis: University of Minnesota Press. Pp. 23-36.
  • Griffiths, Paul E. and James Tabery (2013), “Developmental Systems Theory: What Does It Explain, and How Does It Explain It?”, Advances in Child Development and Behavior 44: 65-94. 
  • Aspinwall, Lisa G., Teneille R. Brown, and James Tabery (2012), “The Double-Edged Sword: Does Biomechanism Increase or Decrease Judges’ Sentencing of Psychopaths?”, Science 337(6096): 846-849.
  • Tabery, James and Paul E. Griffiths (2010), “Historical and Philosophical Perspectives on Behavioral Genetics and Developmental Science”, in Hood, Halpern, Greenberg, and Lerner (Eds.), Handbook of Developmental Science, Behavior, and Genetics. Wiley-Blackwell, pp. 41-60.
  • Tabery, James (2009), "From a Genetic Predisposition to an Interactive Predisposition: Rethinking the Ethical Implications of Screening for Gene-Environment Interactions", Journal of Medicine and Philosophy 34: 27-48.