School of Medicine

Medical Ethics

Support Funding

Research Support Since 2005

Jeff Botkin, MD, MPH

  • Agency NIH Title: R21 Improved Prenatal Genetic Screening Decision Making through Game Technology (Rothwell PI) Description: This project will develop and conduct a preliminary evaluation of a game application for pregnant couples to enhance education and clarify values regarding prenatal screening Role : Co-Investigator Proposed funding: $272,000
  • Agency: NIH Title: UL1RR025764-01 University of Utah Center for Clinical and Translational Science Role: Director of Ethics and Regulator Core (PI McClain D) Duration: 10/2013 – 9/2018 Funding: $4,513,700 annual direct costs
  • Agency NIH 1P20HG007249-01 Title: The Utah Center for Excellence in the Ethical, Legal, and Social Implications of Genetics Description: This is a P20 funded grant to fund a center of excellence that will focus on prenatal screening and newborn screening issues Role: PI Proposed funding: $525,000 (3 years)
  • Agency NIH #HG005691 Title: Advancing Collaborative Genetic Research: Ethical and Policy Challenges Description: This CWRU project will evaluate policies and practices of informed consent for tissue banking at CTSA institutions and develop recommendations for uniform policies Role: Investigator (Rivera, PI) Proposed amount: $1.9 million Duration: 3 years
  • Agency: NIH 1R01HD062762 Title: R01 the efficacy and impact of prenatal education about newborn screening Description: This project will design and evaluate new educational tools for parents regarding newborn screening Role: PI Proposed Amount: $2.8 million direct and indirect Duration: 4 years
  • Agency NIH Title: Pilot newborn screening project for identification and prospective follow-up of infants with spinal muscular atrophy Description: The project will design and implement a pilot study of SMA newborn screening, including an assessment of ethical, regulatory, and psychosocial issues Role: Co-investigator at 0.10 FTE (Swoboda, PI) Proposed amount: $1.66 million direct and indirect Duration: 5 years
  • Agency: D1BRH20425-01-00 Title: Congressionally-Mandated Health Information Technology Grant: The Utah Biobank Initiative Role: Director, Governance and Community Engagement Cores (Mitchell PI) Duration: 9/10 – 8/12 Funding: $1.6 million
  • Agency: NIH/NHGRI 1 R01 HD058854-01 Title: Methods for promoting public dialogue on the use of residual newborn screening samples for research. Role: PI Duration: 9/08 – 6/11 Funding: $1.2 million direct costs
  • Agency: NIH Title: UL1RR025764-01 University of Utah Center for Clinical and Translational Science Role: Director of Ethics and Regulator Core (PI McClain D) Duration: 05/19/2008 – 4/30/13 Funding: $4,513,700 annual direct costs

Samuel Brown, MD, MA

  • 06/01/13 - 06/01/16 Improving Personalized Prognostication in Critical Illness. This project develops a novel method for automated calculation of APACHE IV and tests it against gold-standard APACHE IV as well as a Bayesian classifier. Principal Investigator: Samuel M. Brown Direct Costs: $39,854 Total Costs: $39,854 Intermountain Research and Medical Foundation Role: Principal Investigator
  • 06/26/13 - Present Optimizing ICU Safety through Patient Engagement, System Science and Information Technology. This represents the BIDMC work within the Libretto Consortium; I work primarily on the electronic communication portal and measurement work. Principal Investigator(s): Ken Sands; Daniel Talmor Direct Costs: $4,500,000 Total Costs: $5,000,000 Gordon and Betty Moore Foundation Role: Co-investigator
  • 09/18/13 - Present Value Personas and Decision-making Strategies in Life-threatening Illness: Methodological Studies. This project explores individual differences relevant to how individuals might experience the stresses of an ICU admission, using surveys, simulated decision making, and focus groups. I am senior investigator on this project. Principal Investigator: Eliotte L. Hirshberg Direct Costs: $60,000 Total Costs: $60,000 Intermountain Research and Medical Foundation Role: Co-investigator
  • 07/01/14 - 07/01/16 R21HL123433 Discovery and Prediction of Novel Functional Outcome Phenotypes for ARDS. I am contact PI on this project employing "big data" clustering techniques to identify and develop prediction rules for long-term outcome phenotypes among survivors of ARDS. Principal Investigator(s): Samuel M. Brown; Dale Needham Direct Costs: $197,652 Total Costs: $218,434 National Heart, Lung, and Blood Institute Role: Principal Investigator
  • 12/01/14 - 12/01/17 Physiology of Acute Stress among Family Members of ICU Patients (CORT-LT). A prospective observational study of autonomic nervous system function and salivary cortisol among family members of patients admitted to the ICU. Investigating the association between markers of acute stress and psychological distress 3 months after ICU admission. I am the senior investigator on this project. Principal Investigator: Eliotte L. Hirshberg Direct Costs: $60,000 Total Costs: $60,000 Intermountain Research and Medical Foundation Role: Co-investigator

Leslie Francis, PhD, JD

  • National Science Foundation, Law & Social Sciences Program, postdoctoral fellowship to study legal issues facing adults with autism ($200,000; 2013-2015) NSF SES-1228503
  • Office of the National Coordinator for Health Information Technology, “Non HIPAA Covered Entities,” principal investigator on subcontract for study, 2010.
  • University of Utah Seed Grant (co-principal investigator with Margaret P. Battin), “Ethics and Infectious Disease,” 2005, $40,000.

Brent Kious, MD, PhD

  • Research Grant 8/2012-present, Pilot study of sertraline for the prevention of PTSD in burn victims, Principal Investigator: Brent M. Kious, R. Harold Burton Foundation

Erin Rothwell, PhD

  • 7/1/2015-6/30/2019 25% FTE$2,403,087 Pending Funding (9%)The Effect of Video Informed Consent Information on Residual Newborn Specimen Research Co-PI (Co-PI Botkin)
  • 4/1/2015 to 3/31/17 20% FTE $409,750 Funded Improving Parental Decision Making about Prenatal Screening through Interactive Technology PI
  • 4/1/13 to 3/31/16 10% FTE Funded Utah Center for Excellence in (Ethical, Legal and Social Implication) Research (UCEER) NIH (HG007249 )Co-I (Botkin, PI)
  • 11/01/2012-02/28/2016 15% FTE *Subcontract Funded Advancing Collaborative Genetic Research: Ethical and Policy Challenges NIH (R01HG005691) Co-I (Rivera, PI)
  • 7/1/2011-6/30/2016 20% FTE Yr 01, 10% FTE Yrs 02-04 ($2,869,598) Funded Parent Education and Choice on Retention and Use of Newborn Screening Samples NIH (R01HD062762)