Clinical Trials & Studies
Dr. Swoboda has been enrolling SMA patients in clinical studies at the University of Utah since 1999. A major part of this effort has been dedicated to the development of a natural history database for SMA. Every child with SMA evaluated at the Primary Children’s Medical Center (PCMC) Neuromuscular Clinic has the opportunity to enroll in these studies. This allows us to collect clinical information that can be used to advance our knowledge of the full spectrum of problems facing SMA patients and their families, whether or not these patients are interested in enrolling in therapeutic clinical trials.
We have used our experience, in collaboration with other groups nationally and internationally, to develop a series of specific protocols for optimizing clinical management in our patients (see About Spinal Muscular Atrophy). Dr. Swoboda collaborates with Dr. Mark Bromberg, director of the University of Utah MDA clinic, to evaluate and treat adults with SMA. Our team works closely with the General Clinical Research Center to ensure support and advocacy for research subjects at our center.
For more information regarding ongoing or completed clinical trials, please see Ongoing or Completed Trials & Studies.
