Measuring End-of-life Preferences for Alzheimer's Disease and Related Dementias
Mar 7, 2018 1:30 PM
Community engagement is recruiting a panel of participants who have been diagnosed with early stage dementia and his/her primary caregiver. The panel will evaluate an end-of-life planning tool for individuals with dementia. The studio will be held on March 17 from 12:00 to 1:30pm at 515 East 100 South in the Hollywood Room.
During the studio, the participants will evaluate whether available tools:
- provide enough information for a caregiver to take over the decision-making process regarding end-of-life care once the individual with dementia is no longer able to make decisions, and
- address the main values and care preferences of the individual with dementia.
The information obtained in this study will help family and medical providers make end-of-life care decisions that represent the wishes of the individual with dementia. This study is being conducted by a team of researchers at the University of Utah Health.
During the studio, attendees will participate in a 90-minute focus group. Questions will be asked about the usability and comprehensiveness of an end-of-life planning tool for persons with dementia. Specifically, the investigators will ask about how the planning tool could be revised to address family relationships with the individual with dementia as well as each other. In addition, it will evaluate if caregivers feel that the tool provides enough information for them to confidently take over decision making in the later stages of dementia. The focus groups discussions will be recorded for study purposes only.
To participate in the studio, please contact:
Call (801) 585-5287
Call or text (801) 637-3862
Stacy W. Kish