What is Patient-Centered Research?

Patient-centered research is the idea that research outcomes are better when patients, caregivers, clinicians, and other stakeholders participate in the research process from the beginning.

Patient-centered research asks patients, community members, and other stakeholders to participate in the research process by:

  • choosing which topics are studied (topic selection);
  • giving input in how research studies are designed and conducted (study design); and
  • helping determine how research findings are made available to the broader community (research dissemination).

By asking patients and other stakeholders to participate in health research, health research can be more patient-centered, trustworthy, and useful.

Why Should Patients Participate in the Research Process?

When most people think of involving patients in medical research, they think of patients as research subjects—in clinical trials or other types of research studies.

But involving patients in the research process—from the idea stage to final studies—helps researchers bring cutting-edge science to the bedside faster.

What Is the Patient-Centered Outcomes Research Institute (PCORI)?

The Patient-Centered Outcomes Research Institute (PCORI) is a national organization that funds research that helps patients and caregivers make health care decisions that are better informed.

PCORI funds organizations that engage patients and community members in research projects.

Research Matchmaking at CCTS is funded by PCORI.

Learn more about PCORI

Contact Us

Sarah Woolsey, MD, FAAFP
Utah Medical Director, Comagine

Email: SWoolsey@comagine.org

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