Erin P. Johnson

Erin P. Johnson, PhD

Languages spoken: English

Academic Information

Departments Primary - Obstetrics & Gynecology

Divisions: Maternal Fetal Medicine

I am a Research Assistant Professor in the department of Obstetrics and Gynecology at the University of Utah, co-founder of the departmental resource Center for Obstetric and Reproductive Shared Decision Making and Clinical Implementation (CiRCLE), and Center Director of the NIH-funded ELEVATE Maternal Health Center of Excellence. I have a PhD in Cognitive Psychology and have worked in health research for the last 13 years. While my research interests and research teams been varied, including work in health-related quality of life, health services research, and reading development, the majority of my experience during the past 13 years has been with Dr. Erin Rothwell, working to design and assess several decision support tools related to genetic testing and women’s health, including prenatal screening, carrier screening, genetic testing of embryos for IVF, stillbirth and the retention of newborn screening bloodspots for research use. I’m currently a member of the research team for the following federally funded projects: Comparing Game Facilitated Interactivity to Genetic Counseling for Prenatal Screening Education (Rothwell; R01HG011921); Implementing a Novel Consent Process for Biospecimen Research after Newborn Screening in Hospitals Serving Diverse Patients (Rothwell; R01HD082148; ELEVATE Center: Reduction of Maternal Morbidity from Substance Use Disorder in Utah (Metz; U54HD113169).

Education History

Postdoctoral Training University of Utah
 Certificate
Doctoral Training University of Denver
 PhD
Graduate Training University of Denver
 MA
Undergraduate Emory University
 BS

Selected Publications

Journal Article

  1. Wallace AS, Park S, Guo JW, Johnson EP, Elliot M, Elmore CE, Bristol AA (Accepted). Reconsidering Risk: Instrumental Social Support and 30-Day Utilization After Discharge. (Epub ahead of print) Health Aff Sch.
  2. Riches, Naomi O Workalemahu, Tsegaselassie Johnson, Erin P Lopez, Sarah Blue, Nathan Page, Jessica Silver, Robert Rothwell, Erin (2024). Factors Contributing to Uptake of Stillbirth Evaluations: A Qualitative Analysis. BJOG: An International Journal of Obstetrics & Gynaecology, 132(5), 606-613.
  3. Wallace, A S Bristol, A A Johnson, E P Elmore, C E Raaum, S E Presson, A Eppich, K Elliott, M Park, S Brooke, B S Weiss, M E (2024). Impact of Social Risk Screening on Discharge Care Processes and Postdischarge Outcomes: A Pragmatic Mixed-Methods Clinical Trial During the COVID-19 Pandemic. Med Care, 62(10), 639-649.
  4. Elmore CE, Elliott M, Schmutz KE, Raaum SE, Johnson EP, Bristol AA, Conroy MB, Wallace AS (2024). Primary care clinicians’ views on assessing patient readiness for discharge, hospital discharge communication, and transitional care management: Results from a mixed-method study. J Am Board Fam Med.
  5. Johnson, EP, Riches, NO, Aljardali, MW, Nussbaum, P, Dean-Olmsted, E, Rothwell, E (2024). Informal Prenatal Genetic Screening Education: What can you learn from Google and YouTube? . Genet Med Open.
  6. Wallace, AS, Raaum, SE, Johnson, EP, Presson, AP, Allen, CM, Elliott, M, Bristol, AA, Elmore, CE (2023). Impact of COVID-19 Visitation Policies and Hospital Capacity on Discharge Readiness in Medicine Patients. Discov Health Syst, 2(1), 45.
  7. Riches NO, Johnson EP, Subramaniam A, Vora NL, Hardisty E, LaRiviere K, Rothwell E (2023). Understanding the experiences and perspectives of prenatal screening among a diverse cohort. Prenat Diagn, 43(5), 605-612. (Read full article)
  8. Rothwell E, Riches NO, Johnson E, Kaphingst KA, Kehoe K, Jenkins SM, Palmquist R, Torr C, Frost CJ, Wong B, Bonkowsky JL (2022). Evaluating visual imagery for participant understanding of research concepts in genomics research. J Community Genet, 14(1), 51-62. (Read full article)
  9. Elmore C, Bristol A, Barry L, Iacob E, Johnson E, Wallace A (2022). Perceptions of Discharge Readiness and Engagement in Discharge Planning for Spousal versus Nonspousal Caregivers. Innov Aging, 6(Supp. 1), 228-9.
  10. Bristol AA, Elmore CE, Weiss ME, Barry LA, Iacob E, Johnson EP, Wallace AS (2022). Mixed-methods study examining family carers' perceptions of the relationship between intrahospital transitions and patient readiness for discharge. BMJ Qual Saf. (Read full article)
  11. Topham EW, Bristol A, Luther B, Elmore CE, Johnson E, Wallace AS (2022). Caregiver Inclusion in IDEAL Discharge Teaching: Implications for Transitions From Hospital to Home. Prof Case Manag, 27(4), 181-193. (Read full article)
  12. Schmutz KE, Wallace AS, Bristol AA, Johnson EP, Raaum SE (2022). Hospital Discharge During COVID-19: The Role of Social Resources. Clin Nurs Res, 31(4), 724-732. (Read full article)
  13. Eaton J, Cheek-ODonnell S, Johnson E, Clark L (2021). Using ethnodrama to support parents in sense-making after prenatal or neonatal diagnosis of a child's disabling condition. J Appl Res Intellect Disabil, 35(1), 261-270. (Read full article)
  14. Crawford A, Hopkin A, Rindler M, Johnson E, Clark L, Rothwell E (2021). Women's Experiences With Palliative Care During Pregnancy. J Obstet Gynecol Neonatal Nurs, 50(4), 402-411. (Read full article)
  15. Pett MA, Guo JW, Cardell B, Johnson EP, Guerra N, Clark L (2021). Psychometric properties of a brief self-reported health-related quality of life measure (HRQoL-IDD) for persons with intellectual and developmental disabilities. J Appl Res Intellect Disabil, 34(3), 877-890. (Read full article)
  16. Dugger C, Anderson HS, Miller CE, Wong B, Johnson EP, Rothwell E (2020). Assessing clinical education tools for expanded carrier screening. J Genet Couns, 30(2), 606-615. (Read full article)
  17. Rothwell E, Cheek-ODonnell S, Johnson E, Wilson A, Anderson RA, Botkin J (2021). Exploring the use of a Comic for Education about Expanded Carrier Screening among a Diverse Group of Mothers. J Commun Healthc, 14(3), 252-258. (Read full article)
  18. Rothwell E, Johnson E, Wong B, Goldenberg A, Tarini BA, Riches N, Stark LA, Pries C, Langbo C, Langen E, Botkin J (2020). Comparison of Video, App, and Standard Consent Processes on Decision-Making for Biospecimen Research: A Randomized Controlled Trial. J Empir Res Hum Res Ethics, 15(4), 252-260. (Read full article)
  19. Riches NO, Johnson EP, Frost CJ, Goldenberg AJ, Rothwell E (2020). The limited use of US residual newborn screening dried bloodspots for health disparity research. Genet Med, 22(10), 1723-1726. (Read full article)
  20. Rothwell E, Lamb B, Johnson E, Gurtcheff S, Riches N, Fagan M, Sabatello M, Johnstone E (2020). Patient perspectives and experiences with in vitro fertilization and genetic testing options. Ther Adv Reprod Health, 14, 2633494119899942. (Read full article)
  21. Rothwell E, Johnson E, Riches N, Botkin JR (2018). Secondary research uses of residual newborn screening dried bloodspots: a scoping review. Genet Med, 21(7), 1469-1475. (Read full article)
  22. Rothwell E, Johnson E, Wong B, Rose NC, Latendresse G, Altizer R, Zagal J, Smid M, Watson A, Botkin JR (2018). The Use of a Game-Based Decision Aid to Educate Pregnant Women about Prenatal Screening: A Randomized Controlled Study. Am J Perinatol, 36(3), 322-328. (Read full article)
  23. Lamb B, Johnson E, Francis L, Fagan M, Riches N, Canada I, Wilson A, Mathiesen A, Sabatello M, Gurtcheff S, Johnstone E, Rothwell E (2018). Pre-implantation genetic testing: decisional factors to accept or decline among in vitro fertilization patients. J Assist Reprod Genet, 35(9), 1605-1612. (Read full article)
  24. Rothwell E, Botkin JR, Cheek-ODonnell S, Wong B, Case GA, Johnson E, Matheson T, Wilson A, Robinson NR, Rawlings J, Horejsi B, Lopez AM, Byington CL (2018). An empirical assessment of the short-term impacts of a reading of Deborah Zoe Laufer's drama Informed Consent on attitudes and intentions to participate in genetic research. AJOB Empir Bioeth, 9(2), 69-76. (Read full article)
  25. Rothwell E, Goldenberg A, Johnson E, Riches N, Tarini B, Botkin JR (2017). An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots. J Empir Res Hum Res Ethics, 12(5), 335-342. (Read full article)
  26. Rothwell E, Johnson E, Mathiesen A, Golden K, Metcalf A, Rose NC, Botkin JR (2016). Experiences among Women with Positive Prenatal Expanded Carrier Screening Results. J Genet Couns, 26(4), 690-696. (Read full article)
  27. Rothwell E, Wong B, Johnson E, Botkin JR (2017). Education for fathers about newborn screening and leftover dried blood spots. J Community Genet, 8(3), 239-241. (Read full article)
  28. Clark L, Pett MA, Cardell EM, Guo J, Johnson E (2016). Developing a Health-Related Quality-of-Life Measure for People With Intellectual Disability. Intellect Dev Disabil, 55(3), 140-53.
  29. Shamir H, Johnson EP (2012). The Effectiveness of Computer-Based EFL Instruction among Primary-School Students in Israel. EMI Educ Media Int, 49(1), 49-61.
  30. Johnson EP, Pennington BF, Lowenstein JH, Nittrouer S (2011). Sensitivity to structure in the speech signal by children with speech sound disorder and reading disability. J Commun Disord, 44(3), 294-314. (Read full article)
  31. Betjemann RS, Johnson EP, Barnard H, Boada R, Filley CM, Filipek PA, Willcutt EG, DeFries JC, Pennington BF (2009). Genetic covariation between brain volumes and IQ, reading performance, and processing speed. Behav Genet, 40(2), 135-45. (Read full article)
  32. Johnson EP, Perry J, Shamir H (2010). Variability in reading ability gains as a function of computer assisted instruction method of presentation. Comput Educ, 55(1), 209-17.
  33. Johnson EP, Pennington BF, Lee NR, Boada R (2009). Directional effects between rapid auditory processing and phonological awareness in children. J Child Psychol Psychiatry, 50(8), 902-10. (Read full article)
  34. Phinney E, Pennington BF, Olson R, Filley CM, Filipek PA (2007). Brain structure correlates of component reading processes: implications for reading disability. Cortex, 43(6), 777-91. (Read full article)

Review

  1. Johnson EP (2016). Human Subjects Research Regulation: Perspectives on the Future. [Review]. Am J Bioeth.

Book Chapter

  1. Rothwell E, Johnson E (2017). Specimen Science: Ethics and Policy Implications. In Rivera SM, Bierer BE, Cohen IG, Lynch HF (Eds.), Investigator’s Role for Innovative Consent Methods with Biospecimen Research. Cambridge, MA: MIT Press.

Conference Proceedings

  1. Shamir H, Johnson EP, Brown K (2009). Waterford Assessments of Core Skills: A computerized adaptive reading test for Pre-K through 2nd grades. First International Conference on Computer Supported Education, 1, 24-30.

Commentary

  1. Cohen, SR, Nantume, A, Baayd, J, Hanson, OR, Smid, MC, Simmons, R, Johnson, EP, Tao, KW, Metz, TD, Gero, A, Smith, JD, Wilson, C, Watt, MH (2025). Protocol for the INSPIRE Study: A training package for the intrapartum team to promote respectful and non-stigmatizing care for patients with substance use disorder. Subst Use Addctn J.
  2. 3Debbink, MP, Tanana, H, Murray, JL, Blosser, P, Horse, L, Monroy, C, Spiess, S, Charles, JE, Turok, DK, Smid, MC, Allshouse, AA, Smith, JD, Cohen, SB, Johnson, EP, Metz, TD, Gordon, AJ (2025). Culturally Engaged Recovery - MOms connected through Native communitY (CEREMONY): An implementation study to evaluate the adaptation and implementation of an integrated perinatal SUD clinical model for pregnant and postpartum Native people. Subst Use Addctn J.
  3. Johnson, EP, Smid, MC, Cohen, SR, Watt, MH, Debbink, MP, Gordon, AJ, Smith, JD, Turok, DK, Charles, JE, Parker, B, Green, TH, Metz, TD (2025). The ELEVATE Maternal Health Center of Excellence: A program to reduce maternal morbidity from substance use disorder in Utah. Subst Use Addctn J.