Erin P. Johnson

Erin P. Johnson, PhD

Languages spoken: English

Academic Office Information

Erin.P.Johnson@hsc.utah.edu

For three years I assisted research faculty at the College of Nursing with grant submissions to NIH, HRSA, DoD, and several small and large foundations. Currently, I manage research projects for Drs. Erin Rothwell and Jeff Botkin, exploring issues of informed consent for genetic research. In addition to this work, I am a member of a research team developing a valid and reliable measure of health-related quality of life (HRQOL) that can be used in both clinical and community settings to aid those institutions in their goal to improve the overall health and wellbeing of persons with intellectual and developmental disorders. I have a broad experiential and educational background in cognitive neuorscience, cognitive psychology and education. I enjoy my work with the College of Nursing and Drs. Rothwell and Botkin, where I am able to apply both my research skills and my project management skills to ensure project success.

Education History

Postdoctoral Training University of Utah
 Certificate
University of Denver
 PhD
Graduate Training University of Denver
 MA
Emory University
 BS

Selected Publications

Journal Article

  1. Riches NO, Johnson EP, Subramaniam A, Vora NL, Hardisty E, LaRiviere K, Rothwell E (2023). Understanding the experiences and perspectives of prenatal screening among a diverse cohort. Prenat Diagn, 43(5), 605-612.
  2. Rothwell E, Riches NO, Johnson E, Kaphingst KA, Kehoe K, Jenkins SM, Palmquist R, Torr C, Frost CJ, Wong B, Bonkowsky JL (2022). Evaluating visual imagery for participant understanding of research concepts in genomics research. J Community Genet, 14(1), 51-62.
  3. Bristol AA, Elmore CE, Weiss ME, Barry LA, Iacob E, Johnson EP, Wallace AS (2022). Mixed-methods study examining family carers' perceptions of the relationship between intrahospital transitions and patient readiness for discharge. BMJ Qual Saf.
  4. Topham EW, Bristol A, Luther B, Elmore CE, Johnson E, Wallace AS (2022). Caregiver Inclusion in IDEAL Discharge Teaching: Implications for Transitions From Hospital to Home. Prof Case Manag, 27(4), 181-193.
  5. Schmutz KE, Wallace AS, Bristol AA, Johnson EP, Raaum SE (2022). Hospital Discharge During COVID-19: The Role of Social Resources. Clin Nurs Res, 31(4), 724-732.
  6. Eaton J, Cheek-ODonnell S, Johnson E, Clark L (2021). Using ethnodrama to support parents in sense-making after prenatal or neonatal diagnosis of a child's disabling condition. J Appl Res Intellect Disabil, 35(1), 261-270.
  7. Crawford A, Hopkin A, Rindler M, Johnson E, Clark L, Rothwell E (2021). Women's Experiences With Palliative Care During Pregnancy. J Obstet Gynecol Neonatal Nurs, 50(4), 402-411.
  8. Pett MA, Guo JW, Cardell B, Johnson EP, Guerra N, Clark L (2021). Psychometric properties of a brief self-reported health-related quality of life measure (HRQoL-IDD) for persons with intellectual and developmental disabilities. J Appl Res Intellect Disabil, 34(3), 877-890.
  9. Dugger C, Anderson HS, Miller CE, Wong B, Johnson EP, Rothwell E (2020). Assessing clinical education tools for expanded carrier screening. J Genet Couns, 30(2), 606-615.
  10. Rothwell E, Cheek-ODonnell S, Johnson E, Wilson A, Anderson RA, Botkin J (2021). Exploring the use of a Comic for Education about Expanded Carrier Screening among a Diverse Group of Mothers. J Commun Healthc, 14(3), 252-258.
  11. Rothwell E, Johnson E, Wong B, Goldenberg A, Tarini BA, Riches N, Stark LA, Pries C, Langbo C, Langen E, Botkin J (2020). Comparison of Video, App, and Standard Consent Processes on Decision-Making for Biospecimen Research: A Randomized Controlled Trial. J Empir Res Hum Res Ethics, 15(4), 252-260.
  12. Riches NO, Johnson EP, Frost CJ, Goldenberg AJ, Rothwell E (2020). The limited use of US residual newborn screening dried bloodspots for health disparity research. Genet Med, 22(10), 1723-1726.
  13. Rothwell E, Lamb B, Johnson E, Gurtcheff S, Riches N, Fagan M, Sabatello M, Johnstone E (2020). Patient perspectives and experiences with in vitro fertilization and genetic testing options. Ther Adv Reprod Health, 14, 2633494119899942.
  14. Rothwell E, Johnson E, Riches N, Botkin JR (2018). Secondary research uses of residual newborn screening dried bloodspots: a scoping review. Genet Med, 21(7), 1469-1475.
  15. Rothwell E, Johnson E, Wong B, Rose NC, Latendresse G, Altizer R, Zagal J, Smid M, Watson A, Botkin JR (2018). The Use of a Game-Based Decision Aid to Educate Pregnant Women about Prenatal Screening: A Randomized Controlled Study. Am J Perinatol, 36(3), 322-328.
  16. Lamb B, Johnson E, Francis L, Fagan M, Riches N, Canada I, Wilson A, Mathiesen A, Sabatello M, Gurtcheff S, Johnstone E, Rothwell E (2018). Pre-implantation genetic testing: decisional factors to accept or decline among in vitro fertilization patients. J Assist Reprod Genet, 35(9), 1605-1612.
  17. Rothwell E, Botkin JR, Cheek-ODonnell S, Wong B, Case GA, Johnson E, Matheson T, Wilson A, Robinson NR, Rawlings J, Horejsi B, Lopez AM, Byington CL (2018). An empirical assessment of the short-term impacts of a reading of Deborah Zoe Laufer's drama Informed Consent on attitudes and intentions to participate in genetic research. AJOB Empir Bioeth, 9(2), 69-76.
  18. Rothwell E, Goldenberg A, Johnson E, Riches N, Tarini B, Botkin JR (2017). An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots. J Empir Res Hum Res Ethics, 12(5), 335-342.
  19. Rothwell E, Johnson E, Mathiesen A, Golden K, Metcalf A, Rose NC, Botkin JR (2016). Experiences among Women with Positive Prenatal Expanded Carrier Screening Results. J Genet Couns, 26(4), 690-696.
  20. Rothwell E, Wong B, Johnson E, Botkin JR (2017). Education for fathers about newborn screening and leftover dried blood spots. J Community Genet, 8(3), 239-241.
  21. Clark L, Pett MA, Cardell EM, Guo J, Johnson E (2016). Developing a Health-Related Quality-of-Life Measure for People With Intellectual Disability. Intellect Dev Disabil, 55(3), 140-53.
  22. Shamir H, Johnson EP (2012). The Effectiveness of Computer-Based EFL Instruction among Primary-School Students in Israel. EMI Educ Media Int, 49(1), 49-61.
  23. Johnson EP, Pennington BF, Lowenstein JH, Nittrouer S (2011). Sensitivity to structure in the speech signal by children with speech sound disorder and reading disability. J Commun Disord, 44(3), 294-314.
  24. Betjemann RS, Johnson EP, Barnard H, Boada R, Filley CM, Filipek PA, Willcutt EG, DeFries JC, Pennington BF (2009). Genetic covariation between brain volumes and IQ, reading performance, and processing speed. Behav Genet, 40(2), 135-45.
  25. Johnson EP, Perry J, Shamir H (2010). Variability in reading ability gains as a function of computer assisted instruction method of presentation. Comput Educ, 55(1), 209-17.
  26. Johnson EP, Pennington BF, Lee NR, Boada R (2009). Directional effects between rapid auditory processing and phonological awareness in children. J Child Psychol Psychiatry, 50(8), 902-10.
  27. Phinney E, Pennington BF, Olson R, Filley CM, Filipek PA (2007). Brain structure correlates of component reading processes: implications for reading disability. Cortex, 43(6), 777-91.

Review

  1. Johnson EP (2016). Human Subjects Research Regulation: Perspectives on the Future. [Review]. Am J Bioeth.

Book Chapter

  1. Rothwell E, Johnson E (2017). Specimen Science: Ethics and Policy Implications. In Rivera SM, Bierer BE, Cohen IG, Lynch HF (Eds.), Investigator’s Role for Innovative Consent Methods with Biospecimen Research. Cambridge, MA: MIT Press.

Conference Proceedings

  1. Shamir H, Johnson EP, Brown K (2009). Waterford Assessments of Core Skills: A computerized adaptive reading test for Pre-K through 2nd grades. First International Conference on Computer Supported Education, 1, 24-30.