Patients from the Department of Neurology's Headache School often ask, "How can I help my doctor understand what I'm going through?"
To help us address this relevant question, two of our faculty members volunteered to tell their stories.
In part one of this two-part series, we interviewed Dr. Liam Clark about his experiences with migraine, his advice for other people who live with migraine, and more.
Both Sides of the Story (Part 1): Two Neurologists Specializing in Migraine Who Have Lived with the Disease for Decades
Advice from one headache experiencer to another?
Unfortunately, it seems like there will never be enough headache and migraine subspecialists to see everyone. As a result, there are a lot of misconceptions about the condition in the medical and lay community. Therefore, it’s very important to be your own advocate: look into your condition, research it, and take your questions and what you find to your doctor visits—what you find can empower you. Especially when you’re trying to learn how to better take care of those things within your control, like your diet, hydration, sleep, triggers, and stress management. Headache advocacy, that is, helping to spread the word and get more funding for research, changing laws so that people with headache can more equitably access care – those things are also really meaningful experiences.