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Cerebrovascular

Stroke Thrombectomy and Aneurysm Registry (STAR)

This registry collects existing information and outcomes for patients undergoing an operation for treatment of injuries to the brain, which is used to help predict outcomes for patients undergoing these operations.

Hydrocephalus

HCRN Endoscopic Versus Shunt Treatment of Hydrocephalus in Infants (ESTHI)

A multi-center randomized controlled trial comparing endoscopic third ventriculostomy with choroid plexus cauterization and shunt in infants with hydrocephalus. 

Hydrocephalus Clinical Research Network (HCRN) Core Data Project: Characterizing Patient Populations in the HCRN

A multi-institutional database to stimulate new research protocols, identify potential need for future expansion of the network to incorporate additional patient populations, and provide a descriptive understanding of children with hydrocephalus cared for within the network.

Spine

A Prospective Analysis of Long-Term Clinical Outcomes and 3D Spine Growth in Anterior Vertebral Body Tethering

This study will report the long-term clinical outcomes of skeletally immature patients treated with anterior vertebral body tethering,

Tumor

DAY101 in Gliomas and Other Tumors

A study of Tovorafenib/DAY101 (formerly TAK-580, MLN2480) as a possible treatment in low-grade glioma that has not responded to other treatments.

Study of Aspirin in Patients with Vestibular Schwannoma

A phase II prospective, randomized, double-blind, longitudinal study evaluating whether the administration of aspirin can delay or slow tumor growth and maintain or improve hearing in patients with vestibular schwannoma.

Clinical Benefit of Using Molecular Profiling to Determine an Individualized Treatment Plan for Patients with High-Grade Glioma

The study uses a new treatment approach based on each patient's tumor gene expression, whole-exome sequencing, targeted panel profile, and RNA-Seq to test the efficacy of such an approach in children with high-grade gliomas.

Immunotherapy Before and After Surgery for Treatment of Recurrent or Progressive High-Grade Glioma in Children and Young Adults

A phase I trial studying the side effects of nivolumab before and after surgery in treating children and young adults with high-grade glioma that has come back or is increasing in scope or severity.

Study Comparing Investigational Drug HBI-8000 + Nivolumab vs. Placebo + Nivolumab in Patients with Advanced Melanoma

A clinical study to compare the efficacy and safety of HBI-8000 combined with nivolumab to placebo combined with nivolumab in patients with unresectable or metastatic melanoma.

A Study of a New Way to Treat Children and Young Adults with a Brain Tumor Called NGGCT

The objective of this study is to ensure that patients with localized central nervous system non-germinomatous germ cell tumors treated with induction chemotherapy followed by response evaluation and whole ventricular + spinal canal irradiation maintain excellent 2-year progression free survival.

A Study of Cabozantinib as a Maintenance Agent to Prevent Progression or Recurrence in High-Risk Pediatric Solid Tumors

The study hypothesizes that use of cabozantinib in pediatric patients with ultra-high-risk solid tumors with minimal disease burden can prevent or slow recurrent tumor formation and significantly extend the period of disease control.

Study of Vorasidenib (AG-881) in Participants with Residual or Recurrent Grade 2 Glioma with an IDH1 or IDH2 Mutation (INDIGO)

A phase III study comparing the efficacy of vorasidenib to placebo in participants with residual or recurrent grade 2 glioma with an IDH1 or IDH2 mutation who have undergone surgery as their only treatment.

Molecular and Clinical Risk-Directed Therapy for Infants and Young Children with Newly Diagnosed Medulloblastoma

A multi-center, multinational phase 2 trial that aims to explore the use of molecular and clinical risk-directed therapy in treatment of children 0-4.99 years old with newly diagnosed medulloblastoma.

A Study to See if Memantine Protects the Brain During Radiation Therapy Treatment for Primary Central Nervous System Tumors

This phase III trial compares memantine to placebo in treating patients with primary central nervous system tumors.

Intermediate-size Expanded Access to ONC201 for Patients with H3 K27M-mutant and/or Midline Cliomas

An intermediate-size expanded access protocol to provide ONC201 (dordaviprone) to patients with H3 K27M-mutant and/or midline gliomas who cannot access ONC201 through clinical trials

A Study of the Drugs Selumetinib vs. Carboplatin and Vincristine in Patients with Low-Grade Glioma

This study aims to demonstrate that the efficacy of treatment with selumetinib as measured by event-free survival is non-inferior compared with treatment with carboplatin/vincristine in previously untreated low-grad glioma.