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Navigating the EXperience of healthcare Transitions by helping Adolescents and Young Adults be Informed, Self-directed, and Empowered

Our research team needs your expertise to design an engaging and educational video game to help adolescents and young adults learn and practice skills needed for lifelong congenital heart disease (CHD) care. This game will help patients with CHD to develop essential transition readiness skills so that they can effectively manage their care, self-advocate, and navigate complex healthcare systems as an adult.

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Understanding Self-Advocacy and Implications of Living with Congenital Heart Disease

The overall goal of this study is to understand ways to help adolescents and young adults with congenital heart disease (CHD) prepare for transitioning from pediatric to adult care. We are specifically interested in understanding how to help patients with CHD build self-advocacy skills. We would also like to learn about ethical, legal, and social issues that may occur when living with CHD.

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Dr. Rebecca K. Delaney

Rebecca K. Delaney, PhD

Research Assistant Professor, Health Systems Innovation & Research Division
Co-Director of Postdoctoral Scholars
Chair, Equity, Diversity, & Inclusion Support & Retention Subcommittee
Population Health Sciences Department
Spencer Fox Eccles School of Medicine
University of Utah


I am a Research Assistant Professor in the Division of Health System Innovation and Research within the University of Utah Intermountain Health Department of Population Health Sciences at the Spencer Fox Eccles School of Medicine.

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I am a life-span developmental psychologist with expertise in mixed methods and patient-centered interventions. Specifically, my area of health services research focuses on developing interventions that promote patient and caregiver engagement in medical care and decisions related to chronic disease management.

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Nehal Bakshi
Aneya Cornwall
Isabelle Hong
Ritika Nayan

Interested in collaborating?

Email Dr. Delaney