Patient and Parent Education Needs When Transitioning to Adult Care

The long-term goal is to develop and rigorously test a serious game to build transition readiness skills among AYAs with CHD. The objective of this proposal is to collect qualitative data from key stakeholders (i.e., AYAs with CHD and their parents and/or caregivers) and to design the preliminary learning and pedagogical content for the serious game. The approach is to conduct the first two stages of the Analyze, Design, Develop, Implement, and Evaluate Model of Instructional Design for game development.

Funded by Primary Children's Hospital Foundation

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Delaney Design Box
Rebecca Delaney

Rebecca Delaney, PhD

PRINCIPAL INVESTIGATOR

CO-INVESTIGATORS
Nelangi M. Pinto, MD, MSCI
Ian M. Lindsay, MD
 

SITE
Primary Children's Hospital, Salt Lake City, UT

ACTIVELY RECRUITING

Our research team needs your expertise to design an engaging and educational video game to help adolescents and young adults learn and practice skills needed for lifelong congenital heart disease (CHD) care. This game will help patients with CHD to develop essential transition readiness skills so that they can effectively manage their care, self-advocate, and navigate complex healthcare systems as an adult.

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